My Community

• Members can share personal experiences of living with HIV.  
• Members can ask questions and seek advice from peers about living with HIV.
• The forum offers peer support and community, helping individuals feel less alone.
• It serves as a resource for reliable information about HIV including diagnosis, treatments and managing multiple health conditions.
• Members can promote and sign up to events and opportunities across the UK.

Living with HIV is what connects this community but members connect on a much broader range of interests.

The platform is moderated by a team of trained volunteers based throughout the UK and supported by staff at Terrence Higgins Trust.

My Community is available via an app downloaded to your smart phone (iOS or Android) or via a web browser.

Here you will find activity feeds with posts, videos and links, live chat, personal profiles and dedicated spaces to different topics and themes.

If you have any questions about joining My Community, get in touch at [email protected]

My Community is available to anyone in the UK living with HIV. Our members are from diverse backgrounds and have varied experience and expertise in navigating living with HIV.

Maybe you’ve just received a new diagnosis or you’ve been living with HIV for many years and have some questions around your health. Perhaps you are trying to navigate your relationships, or want to celebrate a success. 

Wherever you are in your journey with HIV you will be welcome. 

If your family member or friend is living with HIV and you are looking for more information or are worried about them, please go to THT Direct.

Health and diagnosis

Find out what you need to know when you first receive your diagnosis and seek advice about telling people you are living with HIV. Discuss treatment options and side effects and find out about U=U (Undetectable = Untransmittable). If you are managing multiple health conditions or navigating parenting, pregnancy, sex, and dating, connect with others to hear their experiences.

Wellbeing and lifestyle

Discover ways to manage your wellbeing and cultivate self-care, find suggestions such as nature, talking therapy or mindfulness, and share what tips and tricks you have found useful. Discuss experiences with addiction, recovery and mental health. Connect with others about hobbies, interests, holiday ideas, and travel tips or through our Film and Book clubs.

Events and opportunities

Share and sign up to online and in-person meetings, events and groups around the UK.

Our communities

We currently host a variety of peer support groups and peer learning workshops to support people living with HIV.

• Work and Skills, for personal development.
• Before 96, for people who were diagnosed before or around 1996.
• Common Bond, a group for women (including trans women) living with HIV.
• Before 96 and beyond, a group for all people living with HIV.

Privacy and confidentiality are important to us and our users.

• My Community is hosted by Mighty Networks which is GDPR compliant. This means your data is stored securely. We do not pass on or sell your personal data to third parties and data and communications are encrypted.
• You don’t have to use your real name or have a profile picture if you don’t want to, and you only have to share what you are comfortable with.
• We have a location function to help users connect with people geographically close to them. The location is not exact, and you don’t have to share yours if you don’t want to.
• If people find us, they must request to join, and answer questions before being approved. We send unique invite links to people we know.
• Different community spaces will have different access settings to ensure members’ privacy and safety.